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  • Bert H. Lange 4.10.70 ~ 1.23.21

Dear Congress

5/7/2014

10 Comments

 
Thank you to all the ALS advocates from across the country who are in Washington, D.C. and meeting with their Members of Congress on Captiol Hill this week.  My family and I appreciate the time you have taken to travel to Washington and tell your stories, advocating for people living with ALS.  We were planning to attend the Advocacy Day and Conference, we ended up rethinking our decision and this year we are not able to attend. We have however done our very best to spread awareness this month and every day of the year as well as send letters to our Members of Congress to tell our story and advocate for what we need to fight and end this disease.  Here is our letter:

Today is the start of the 2014 National Amyotrophic Lateral Sclerosis (ALS) Advocacy Day and Public Policy Conference.  My name is Jennifer Lange and I live in York, Pennsylvania.  I am a registered voter as well as a Registered Nurse and a Social Worker; I am a mother of two children Sophia age 11 and Alex age 10 and a caregiver for my husband Bert Lange who has ALS.  I am sure you receive many letters about all kinds of important topics that voters are advocating for and I realize that your calendars are probably packed full of important issues; however, as a voter I would like if you would take a minute to read my story, I promise I will keep it short and to the point.

My story is really like any other, my husband Bert who is 44 years old started to have difficulty walking one day, he described it as his legs feeling stiff, like they would stick when he walked.  Over a year later that leg stiffness led us to a diagnosis of ALS or Lou Gehrig’s disease.  I will not bore you with all the details of what led up to that diagnosis, what I want you to realize is this…

One day when you are sitting in a meeting you could feel a twitch in one of your arms, we all feel twitches from time to time right?  You could start to have trouble with your pen when you write, or maybe your fingers may be giving you trouble when you type.  You could start to trip as your walking to a meeting.  You will probably think your age is starting to catch up with you or maybe you played tennis too hard last week, but these little nuisances won’t go away.  You will do what everyone does, you will Google and all kinds of things will pop up, your eye will catch ALS, you may have never heard of it, or you may have an idea and you will start to read.  Progressive, neurodegenerative affects nerve cells in the brain and spine, these nerve cells die, this causes all voluntary muscles to become paralyzed, and a person is unable to move, speak or breathe, death will follow.  You will see that there is no medicine you can take; no cure for this disease, the life expectancy is 2-5 years.  You will feel a rush of panic come over you, but your rational mind will tell you not to listen to Google, it must be something else, arthritis, or a pinched nerve. 

You will go to your family doctor, they will nervously examine you, they may run some tests, they may say you should see a neurologist; this will probably take up to a year to rule out every possible cause for your symptoms.  The panic will be real now, you will be praying for it to be anything but ALS, you will want cancer or MS, you will want a disease that maybe there is some type of treatment, some hope.  When you finally enter that neurology office for the final diagnosis you may already know, but it will still seem unreal when they tell you it is ALS.  This could be you.  What would you do if it was you or your spouse, child, parent, or sibling? 

I wanted to come to Washington and advocate in person, to tell you our story.  I booked the hotel room, and paid the registration fee, I filled out a vacation slip at work and the educational trip forms were approved for my children to miss school.  I wanted to meet you in person.  But you see I have two children, and Bert and I made an agreement when we received this diagnosis, this disease would not take over our lives, and ALS would not take a front row seat.  My son turned 10 yesterday, his birthday is important, we had balloons and a birthday breakfast.  We had a basketball hoop waiting in the driveway when he got home from school, we had cake and pizza and we celebrated.  My husband and I don’t want our son to remember his 10th birthday traveling to Washington to talk about ALS, we want him to remember jumping on the trampoline with his friends after eating cake and opening presents.  It was a happy wonderful birthday.  On Friday my children have a track meet at their school; it is a fun event that all the children are excited about.  They prepared during gym class and anxiously waited to be chosen for an event, my son is running the one hundred yard dash, my daughter the four forty relay…they were ready to miss it; they were willing to come to Washington.  My daughter wanted to talk to you and tell you what she wanted for her father.  Bert and I did not want our children to miss the fun event at school, we wanted them to be at school with their friends, we will be in the stands cheering them on, and we will have lunch with them and see their smiles.  I wanted to come to Washington, I think it is important to advocate for this disease, to bring awareness, to tell you that it could be you who receives the diagnosis and become paralyzed unable to breathe, with no treatment or cure.  Bert held me to our agreement; our children come first, our family before ALS. 

So, I write this letter hoping that you will read it and know that ALS can affect anyone.  I hope you will hear my plea.  I want the world to know what this disease is, I want people to be aware that it is out there and what it can do.  I want you to take notice and see the importance of funding for research.  I want you to see the importance of funding for the needs of people living with this disease, they need funding for equipment, medical care, nursing, therapies, and more.  I want for you to know that it could happen to you or someone you love and I want you to make it a priority.  I am sorry that I could not be in Washington to tell you this myself and introduce you to my husband and children, but my husband is right, we should not allow this disease to dictate how we live, it should not take priority over our children, our family.  I appreciate all the ALS advocates out there that made sacrifices to attend the conference; I am grateful that they stormed the hill and told their stories.  I hope you listen to them, I hope they make an impact on the decisions you make in Washington.  I hope you never have to feel the panic that each and every person and family with ALS felt when they were going down that road of diagnosis.  I wish for there to be a treatment and a cure found for this disease.  If you have made it to the end of this letter, I want to thank you for your time and for reading it.  I appreciate the work that you do; I realize it is not easy to address every issue out there.  I am a proud American; I take my right to vote seriously.  I hope that you take ALS Advocacy Day seriously and hear your voters who are living with ALS.  Thank You.

Sincerely,

 Jennifer E. Lange

BE STRONG FIGHT ON ~ Survivor
xoxo Jennifer
   
10 Comments
Cornie
12/17/2014 01:12:28 pm

I am from Ireland, I was diagnosed of ALS in 2006, I have tried all possible means to get cured from this deadly disease but proved abortive until i saw a post on a health forum about a spell caster who casts herbal healing spells to heal all kind of diseases including ALS, Cancer, LUPUS, HIV Aids, Ghonorrhea, Syphillis, Hepers etc, at first i doubted it but decided to give it a try when i contacted him, he helped me cast a herbal healing spell for ALS and i was totaly healed of the deadly disease within 72hours, contact this powerful healer now for cure to any kind of incurable diseases via his email azizahealingtemple@gmail.com

Reply
dr ekpen link
1/23/2015 05:30:10 am



I am out here to testify about the good work Dr ekpen has done in my life with his healing spell. I have be suffering from HIV diseases for the past 2yeares now before I came across Dr ekpenr who healed me with his powerful healing spell. I never believe that Dr ekpen could ever get my HIV-AIDS cured with his healing spell, i have tried almost everything but i couldn’t find any solution to my disease, despite all these happening to me, i always spend a lot to buy a HIV drugs from hospital and taking some several medications but no relieve, until one day i was just browsing on the internet when i come across a great post of a lady who was tstifying about how she get cured of her HIV disease with the help of these great powerful healing spell caster called Dr ekpen. So i have to contact him, and he ask me some few questions and he said a thing i will never forget that anyone who contacted him is always getting his or her healing in just 3 days after doing all he ask from me, so i was happy all the time i heard that from him, so i did all things only to see that at the very day which he said i will be healed,I regain all the strength that has left me before back and i becomes very strong and healthy,this disease almost end my life, so i went to the hospital to give the final test to the disease and the doctor said i am HIV negative, i am very happy and grateful to Dr ekpen about the healing he have given to me with his healing spell. You can also email him for any kind of help via email drekpenspelltemple@gmail.com. or call his mobile number +447031937616. thank you once again Dr ekpen.

Reply
dr ekpen link
1/23/2015 05:30:49 am



I am out here to testify about the good work Dr ekpen has done in my life with his healing spell. I have be suffering from HIV diseases for the past 2yeares now before I came across Dr ekpenr who healed me with his powerful healing spell. I never believe that Dr ekpen could ever get my HIV-AIDS cured with his healing spell, i have tried almost everything but i couldn’t find any solution to my disease, despite all these happening to me, i always spend a lot to buy a HIV drugs from hospital and taking some several medications but no relieve, until one day i was just browsing on the internet when i come across a great post of a lady who was tstifying about how she get cured of her HIV disease with the help of these great powerful healing spell caster called Dr ekpen. So i have to contact him, and he ask me some few questions and he said a thing i will never forget that anyone who contacted him is always getting his or her healing in just 3 days after doing all he ask from me, so i was happy all the time i heard that from him, so i did all things only to see that at the very day which he said i will be healed,I regain all the strength that has left me before back and i becomes very strong and healthy,this disease almost end my life, so i went to the hospital to give the final test to the disease and the doctor said i am HIV negative, i am very happy and grateful to Dr ekpen about the healing he have given to me with his healing spell. You can also email him for any kind of help via email drekpenspelltemple@gmail.com. or call his mobile number +447031937616. thank you once again Dr ekpen.

Reply
Tylor
3/29/2015 10:18:30 pm


i don’t just know the reason why some people is finding it difficult to believe that there is a cure for HIV, i have been HIV+ since last three years with my girlfriend but today i am happy that i am HIV_ with herbal medicine of Dr Zack Balo the great healer,i was browsing in the internet searching for help when i came across a testimony shared by someone on how Dr Zack Balo cure his HIV i was so much in need of getting his treatment but after all Dr Zack Balo brought a smile to my face with his herbal medicine. i am so much happy today that we have someone like this great healer out there, so my people out there kindly contact this great healer: on his email address: wiseindividualspell@gmail.com please sir keep your good work cause there are people out there who is in need of your healing medicine.once more contact him now: wiseindividualspell@gmail.com or contact him on his phone number +2348078927387

Reply
Tanya Albert
7/3/2015 11:14:05 pm

Am Tanya Albert am giving a testimony about Dr. Ekpiku the great Herbalist, he has the cure to all manner of diseases, he cured my herpes simplex virus, though I went through different website I saw different testimonies about different spell casters and herbalist, I was like: 'Many people have the herpes simplex virus cure why are people still suffering from it?' I though of it, then I contact Dr. Ekpiku via email, I didn't believe him that much, I just wanted to give him a try, he replied my mail and Needed some Information about me, then I sent them to him, he prepared it (CURE) and sent it to Airfreight Online Courier Service for delivery, he gave my details to the Courier Office, they told me that 3-5 days I will receive the package and i took the medicine as prescribed by him and I went for check-up 1 week after finishing the medicine, I was tested herpes simplex virus negative, if you are herpes simplex virus patient do me a favor for you to contact him and I will try my possible best to make sure you get cured, when you contact him, make sure you tell him that I referenced you.. contact him via: ekpikuspelhomeofgrace@gmail.com or ekpikuspelhomeofgrace@hotmail.com call +2348073673757 OR whatsapp him ,or search the Google to know more of his product!! http://ekpikuspellhomeofgrace.blogspot.com/ THESE ARE THE THINGS Dr. Ekpiku. . HERPES . HIV/AIDS . CANCER . ALS disease.

Reply
Mabel Raymond
11/5/2015 04:54:26 am



I am from Bahamas. I want to share my testimonies to the general public on how this great man called Dr Osas cured my sister from Genetic Herpes with the herbal medication gotten from dr. Osas, he cures other diseases too. herbal medicine is a great medication. To hell with the government and their insane policy, he has medications that is hundred percent assured to cure genital herpes and all other kinds of herpes and you don't need to spend so much money on anymore . I want you to contact Dr Osas on: doctorosasherbalhome@gmail.com
My family is now a brand new one, so stop your worries and go get your medication and set the family free of the dirty virus that hold no respect to family harmony. Thank you for reading my comment. or contact his number via +2348112252378 or you can as well add him on whatsapp with same number

DOCTOR OSAS CAN AS WELL CURE THE FOLLOWING DISEASE:-

1. HIV/AIDS
2. HERPES
3. CANCER ALL KINDS
4. ALS
5. Hepatitis A,B,C
6. Diabetes
7. CHRONIC DISEASE
8. Coronary Artery Disease (Ischemic Heart Disease)
9. Alopecia
10.Bipolar disorder
11.Bedwetting
12.Carpal tunnel syndrome
13.Celiac disease
14.Ear Infections
15.Endometriosis
16.Epilepsy
17.Chlamydia
18.Syphilis
19.Gonorrhea

Reply
Mary Hanson
9/2/2016 02:24:35 pm

Thank you Dr. Okuns herbal your medicine is a good remedy for herpes cure, and Removing Warts you can contact him via E-mail: herbal.home247@yahoo.com for any types of diseases solutions or WhatsApp him on: +2348078467513

My name is Mary Hanson, am from United State. I want the general public
to know how this great man called Dr. Okuns cure me and my sister from GENITAL HERPES with the herbal medicine gotten from Dr. Okuns, he cures other diseases too like STD, My own was worst I have suffered for Human papilloma virus HPV) for 2years he cure me too, herbal is a great medication. he have a medicine that is 100% percent assured to cure any type of disease and you don't need to spend so much money anymore . I want you to contact Dr. Okuns on: herbal.home247@yahoo.com My family is now a brand new one, so stop your worries and go get your herbal medicine now to get your family free from deadly disease. Once again thanks to Dr. Okuns you can contact him now via phone number: +2348078467513 or email him on: herbal.home247@yahoo.com

Reply
Ashley Balton
12/24/2017 06:31:48 am

IT IS REAL!!! HOW I COMPLETELY GOT RID OF 4 YEARS GENITAL HERPES WITHIN 7 DAYS... GOD IS AWESOME,I AM A LIVING TESTIMONY!!!!....

HIS WEBSITE: http://draramideherbalcure.wordpress.com/contact/

I've been dating for almost 7 years until i contracted GENITAL HERPES VIRUS from my Ex-boyfriend who never told me he was having it.Ever since then i have been searching for cure everywhere because i was feeling so uncomfortable having so many outbreaks, Most people have herpes in one form or another, i was first taking Antiviral medicines such as acyclovir (Zovirax), famciclovir (Famvir), and valacyclovir (Valtrex), which are recommended for treating primary genital herpes outbreaks..But i needed to get rid of it completely, I came across so many testimonies online speaking about cure to herpes. i was so eager to be completely cured, I became a victim of fraud after contacting several so-called herbal doctors i was referred to. I lost a lot of money but i didn't stop searching for a cure.
Then one faithful day,i came across a testimony of a lady saying that she got her Genital herpes cured by a GREAT HERBAL DOCTOR she called Dr. Aramide by contacting him through his email address. And she advised anyone with GENITAL HERPES or SIMPLEX HERPES to contact him for HERBAL CURE. I contemplated for about 4 hours whether or not to contact him. Then something inside of me told me to give a try. I then contacted him through his email and told my problems to him. He told me all the things I needed to do and also gave me instructions to follow, Which i did properly. Just within the 7 days of drinking and applying the herbal medication he sent to me through DHL delivery service, I started feeling changes in my body i went to my medical doctor for check-up, I was so happy when he told me i was no more having GENITAL HERPES VIRUS and that i was free, It was all tears of Joy from that moment, I never thought ROOTS & HERBS could cure HERPES and if i could ever meet a GENUINELY GREAT HERBAL DOCTOR. I'm so grateful to him. i am completely free from GENITAL HERPES VIRUS,i recommended him to a family friend having Simplex Herpes virus, He called me and told me he is also cured completely. I promised to share my own testimony like that of the lady on the internet. If you are also having
*GENITAL & SIMPLEX HERPES... or need cure to diseases/viruses like..
*EPSTEIN-BARR VIRUS...
*ISCHEMIC HEART DISEASE...
*PREDIABETES/DIABETES...
*MENINGITIS...
*HIV...
*LOW SPERM COUNT...
*SYPHILLIS...
*CANCER...
*LOWER RESPIRATORY INFECTION...
*STAPHYLOCOCCUS AUREUS...
*HEPATITIS...
*SHINGLES...
*YELLOW FEVER...
*LUPUS...
*STROKE...
*FIBROID...
*TUBERCULOSIS...
*LEUKAEMIA...
*SICKLE CELL...
*ASTHMA.. Etc..
Without Hesitation Contact him Today for a testimony through his Email _ dr.aramideherbalcure@gmail.com & Website: http://draramideherbalcure.wordpress.com/contact/


For more info;
Phone No: +1(786)581-7266


*GOD IS TRULY FAITHFUL*

Reply
wilson care
2/12/2018 06:07:12 am

God bless Dr. ozman for his marvelous work in my life, I was diagnosed of HIV since 2010 and I was taking my medications, I wasn’t satisfied i needed to get the HIV. out of my system, I searched about some possible cure for HIV i saw a comment about Dr. ozman, how he cured HIV with his herbal medicine, I contacted him and he guided me. I asked for solutions, he started the remedy for my health, he sent me the medicine through UPS SPEED POST. I took the medicine as prescribed by him and 8 days later i was cured from HIV,thank you dr.ozmanspellhome@gmail.com Dr ozman ONCE AGAIN THANK YOU SIR contact him whatsapp number +2349061515609

1 cancer cure
2 diabetes cure
3 ringing ear
4 herpes cure
5 warts cure
6 HPV cure
7 fabriod

Reply
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